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UCL Centre for Nerve Engineering

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James Lind Alliance

James Lind Alliance

Background

Traumatic Brachial Plexus Injuries (TBPI) are life changing and can lead to permanent changes in function of the arm and hand. The severity of symptoms can vary greatly from person to person, and between different affected nerves and joints. Symptoms can be short-term, lasting a few months, whereas others can experience continuous and severe problems for the rest of their lives. Symptoms can include pain, numbness, stiffness, muscle weakness and reduced movement in the arm and hand. The James Lind Alliance (JLA) brings together patients, carers, scientists and health and social care professionals in Priority Setting Partnerships (PSPs) to agree what research matters most in given disease areas. This PSP will tackle the problems relating to TBPI and will address research needs for any stage of the disease or treatment.

Impact

The result of the PSP will be a ‘Top 10’ list of research questions. These will be published and shared publicly. We will then work together with researchers and research funders and where appropriate, the pharmaceutical industry, so that research is conducted to find the answers to these questions.

When will it run?

The PSP will run from Autumn 2022 and will be completed within 18-24 months. Please keep an eye on our social media page (Twitter handle: @JlaTbpi) for further updates on progress, events and calls to join the PSP.

The Team (so far…)

This project is being led by clinicians from the Peripheral Nerve Injury Unit, Royal National Orthopaedic Hospital, researchers from across University College London and JLA advisers.

Ms Hazel Brown

Background: Clinical Specialist Physiotherapist at the Royal National Orthopaedic Hospital and Clinical Researcher at the UCL Centre for Nerve Engineering.

Role in JLA : Project lead responsible for the organisation and management of the project.

Mr Tom Quick

Background: Consultant peripheral nerve surgeon based at the Royal National Orthopaedic Hospital and research lead at the Peripheral Nerve Injury Research Unit.

Role in JLA: I will take part in the priority setting process and share governance of the project with Hazel.

Prof. James Phillips

Background: Professor of Regenerative Medicine at UCL. Co-Director of UCL Centre for Nerve Engineering, leading a research group focussed on developing new technologies to improve nerve repair.

Role in JLA: I will work with the Priority Setting Partnership to facilitate successful identification of research priorities within nerve injury medicine.

Prof. Becky Shipley

Background: Professor of Healthcare Engineering at UCL. Co-Director of UCL Centre for Nerve Engineering, leading a research group focussed on computational modelling in health and disease.

Role in JLA: I will work with the Priority Setting Partnership to facilitate successful identification of research priorities within nerve injury medicine.

Dr Matt Wilcox

Background: Junior Doctor at Oxford Foundation School and UCL Research Fellow with expertise in developing new measurements of nerve regeneration.

Role in JLA: I will manage data acquisition, analysis and dissemination throughout the project.

How to get involved

We want to hear from anyone within the nerve injury community whether you are a patient, clinician, researcher, carer or even just someone who is interested in this area to help shape this project. If you would like more information or to get involved please email tbpi.jla@gmail.com. You can also keep up to date with the latest news and updates via our Twitter @JlaTbpi.

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